Thursday, February 26, 2009
The house is only 1 1/2 years old, so it looks brand new now that it has fresh paint and new carpet. I am really looking forward to getting settled. We plan to buy furniture for it this weekend and move on March 14th. We would move earlier, but I have to have my wisdom teeth removed on March 6th and do not want to worry about moving when I am not feeling 100%. I am definitely not going to miss going up three flights of stairs everyday while toting the boys.
Wednesday, February 25, 2009
Tuesday, February 24, 2009
Thursday, February 19, 2009
Graysen had an echo this morning to look at his heart. Before I explain the results of the echo, I want to explain what I have learned about having a heart baby.
When I first found out about Graysen's condition, I knew that he would have a set of procedures throughout his life. The planner in me wanted to know how many surgeries he would have and when each would occur. I remember drilling the surgeon: "Would it be four?" "Yes." "Could it be five?" "Maybe." "Could it be six?" "Maybe." "Could it be seven?" Lee finally stopped me. It has taken me a year to understand, but I think that I am finally accepting that each case is different and cannot be planned out in advance. Graysen's cardiologist does not like to talk about anything more than three to six months out and what needs to be done at this moment in time.
I know that he will continue to have surgeries and procedures throughout his life. I know that I will not have a lot of notice before each one occurs and that the goal is to maximize the time between them. I also know that Lee and I are extremely blessed to have Graysen. He is very healthy compared to expectations and continues to amaze his doctors with how active and strong he is.
Graysen's echo showed moderate right pulmonary and left pulmonary stenosis. We first found out about this problem in November, but understand it more today. There is narrowing and turbulence in the pulmonary artery where the shunt has been stitched to it. (The connection of the shunt to the right ventricle of the heart looks great. The flow is laminar until the connection to the pulmonary artery.) The pressure estimate for the right artery is 60. This is 75% of normal systolic pressure (80), which is when it is time to start talking about the possibility that something will need to be done to alleviate pressure.
There is a missing piece of the puzzle. Graysen has a leaky valve going into the right ventricle of the heart. The doctor has tried twice (November and today) to get a pressure gradient measurement at this point, but cannot get a clear reading. This reading would give more information about the severity of the pulmonary stenosis.
The plan going forward is to try another echo in June. If the results are the same as the past two (unsatisfactory in regards to amount of data and condition of pulmonary artery), he will be scheduled for a sedated echo in Greenville. If the sedated echo confirms the stenosis, the first corrective step would be a cath procedure at MUSC to obtain detailed pressure measurements and balloon.
I do have to say that Graysen was very good during his echo. I allowed him to have his first sucker during the echo. He loved it and was so amazed that he laid quietly while licking it.
Wednesday, February 18, 2009
Today, Caleb went to Aunt Kim's to play with Ellison. I am trying to get back to our normal routine. I have been sick and am finally starting to get better. Lee did 100% mommy duty Saturday through Monday while I was sick in bed. He did a great job and was a big help.
I have started getting out, but I am still not back to my old energy level. Graysen has an echocardiogram and an appointment with the pediatric cardiologist tomorrow, so that will force me to get out and start getting back to normal.
Needless to say, this sickness has put us behind on working on the house and on my weekly chores. I hope to get caught up soon.
Also, as seen in the pictures, Caleb finally got a much needed haircut! Lee wasn't ready to tackle Graysen without me being able to help, so Graysen gets to keep his long hair for a little while longer.
Friday, February 13, 2009
Here are a few pictures from today.